Wednesday, April 24, 2013

Being Weird

I am weird.  Yes, it's true, and I'm not insulting myself.  I used to think this was a bad thing.  I've learned a lot since then, and motherhood does wonders for perspective.

First of all, I really couldn't help it.  I've never fit in perfectly anywhere.  I've always felt like the oddball in my family.  I've always been outspoken, sometimes way too honest, a combination of my mother's innocence and naivety and my father's rebelliousness and tell-it-like-it-is mouth.  Both parents found me difficult, although my dad and I weathered heated arguments much better than mom and I.

Then, there was a cultural issue.  I grew up in Detroit.  I don't mean the Metro Detroit area.  I mean Detroit.  Being a white girl, I was the minority. . . and I loved it.  By the time I came along, my parents had already lived there for 12 years.  So, my family was loved and respected.  See, my mom loved everybody.  She made them cookies and kissed their boo-boos.  On the other hand, my dad was intimidating.  He never fired a shot (except in the ground on New Years, but in Detroit, everybody does that), but all the neighbors (especially the troublemakers) knew he would use one of his shotguns to defend his family if he had to.  I had a little brother when I was 3 1/2, and protected him in true Detroit style (with my fists) while he was still smaller than I was.  No, that wasn't very smart, but that's just life down there.  I got myself hurt, actually.  However, my little brother was no longer getting hit.  So, success.  ;)  One time, I jumped in between my little brother and a guy that was about 3 years older than he was.  That boy had me on the ground punching me.  Then, my big brother came out.  He didn't beat him up.  He just picked him up by his shirt, thew him up on the garage door, yelled at him to never touch his sister again, and chased him all the way home.  My big brother was pretty ticked with me that instead of calling him for help in the first place, I just jumped in myself.  Oh, well.  I'm kinda glad I did anyway.  Even though I totally lost the fight, it felt good to protect my little brother like that.  In Detroit, there were a lot of gunshots.  There was a lot of yelling.  People are not fake there.  They say exactly what they feel.  They express themselves physically.  They are loud.  They don't call the police because someone is "disturbing the peace".  What peace?!  haha!!  I sat up in my bedroom numerous times and watched drug deals, watched the long line of cars down the street as each one bought their drugs from the drug house (there was always at least one), and called 911 because I heard women and children screaming at night.  It wasn't until I went away to college that I learned that it's not normal to hear gunshots at night.  There were good things too.  In a neighborhood like that, the good people are very close.  People look out for each other.  By the time I was a teenager, the bad guys on the street were the same guys that grew up with my older siblings.  My mom had taken care of them as children.  They had been welcome to walk right in and help themselves to the candy dish or some of my mom's famous chocolate chip cookies.  They were loved at my house, and because of that, they loved and respected us.  There's a good life lesson.  There were a couple times there was some trouble that I know of (a lot was kept from me), but overall, they left us alone.

So, now you know a little about my childhood neighborhood.  Here's the next piece of the puzzle.  I went to school 6 miles up the street in the suburbs.  Yes, the color of my skin was like the other students', but I did not fit in at all.  They were all from the suburbs.  I lived south of 8 mile, and many of their parents wouldn't go south of 9 or 10 mile.  This makes sense if you know the extremely segregated area.  So, at school, I was a strange mixture of "little miss goody goody" and "little white girl trying to impress all the suburbia kids with my big bad ghetto reports".  Oh brother. . .  LOL!!  No wonder it was hard for me to make friends!  I didn't exactly make it easy for people.  We went to the church associated with the school.  It was (is) a pretty strict independent fundamental baptist church. I had a very tender heart towards God, and accepted Christ as my Saviour and was baptized at a young age.

Now, all the above shows you a little of what my childhood was like.  Now, let's talk about the present.   I went to college for a couple years, learned a lot about life, made friends, and met my husband.  Our story would make a whole separate blog post.  Suffice it to say that we were just friends for a year and a half, dated for 7 months before we were engaged, and we were married 11 months later, one year before Matt graduated from college.  In 11 years of marriage, we've moved 7 times; lived in Wisconsin, Illinois, Michigan, California, and New York. We have home water births, except the one time we couldn't and fought for a water birth in the hospital.  I breastfeed as long as my child needs it.  It has taken up to 3 or 3 1/2 years.  Our 6th child is due in about 3 1/2 months.  2 of our sons have severe hemophilia and at least 1 daughter is a carrier.  We homeschool.  I stink at formal education, but am a great teacher.  Our house is a bit chaotic with some exceptions.  I am not good at a lot of things people assume I am good at just because we have a larger family:  meal planning, shopping, money management, time management, etc.  I am good at having fun, playing, listening, communicating with my children, seeing opportunities to teach, encouraging creativity and imagination, and standing my ground.

Okay, that was a bit much.  I didn't expect that to be so long!!!  The point I want to make is this.  Everyone has a story.  I shared some of mine with you.  I know what has made me unique, aka "weird".  It's okay with me now.  In school, I was always a little hurt when one girl always wrote "You are kinda weird" in her note she signed on the back of her school picture she gave me every year in elementary school.  I know I was weird.  I still am.  The difference is that when I was 8 or 9 or even 17, I couldn't appreciate myself for who I was.  I am so thankful now that my mom let me go to school wearing odd socks (Hey, I was a Punky Brewster fan!), and multicolored outfits.  I stuck out in the crowd even in the 80s and 90s, but I was being me.  Yes, I was made fun of a bit, but it was better than being forced to fit a certain mold for the purpose of looking just like everyone else.  It makes me a better mom today.

I want my children to enjoy exactly who they are.  I don't want them to look like everyone else.  How boring is that?!  Think of all the amazing people in history.  Did they fit in or look like everyone else?  Well, of course not!  That's what made them awesome!  They stick out in history because they were different.  I love my children because they are mine.  I love finding out who they are and what they love.  Each one is different and amazing and yes, weird.  I couldn't be prouder!


Sunday, April 3, 2011

Experimental Dinner Success!!!

Last night, I made something new for dinner.  I just made it up as I went along.  Everybody liked it!!  Of course, I forgot to take a picture, but I'll tell you the recipe:

Ingredients:
3 Tbs butter
4 chicken breasts
salt (to taste)
pepper (to taste)
paprika (to taste)
regular size can of kidney beans
regular size can of corn
1 clove of garlic (pressed)
1/2 box of penne noodles
1/3 box of Swanson chicken broth
a bunch of kale (about 8 leaves ripped up)


First, I trimmed and cubed 4 chicken breasts. 
Then, I melted 3 Tbs butter in my wok pan, and added the chicken.
When the chicken was cooked, I added a can of red kidney beans and a can of corn. 
I seasoned with salt, pepper, paprika, and 1 pressed garlic clove.
Then, I threw in 1/2 a box of penne noodles and 1/3 of a box of Swanson broth. 
I cooked it for a while, then added a bunch of ripped up kale.
When the noodles were cooked, it was done!
It's really yummy! 

Let me know if you try it!  :o)

Friday, April 1, 2011

My Guy

Matt. . .   I met him the first day at college.  He and I became friends after a while.  I could tell he liked me, but I wasn't interested at that point.  So, he backed off.  We never could stop being friends, though.  We would even sit and talk about girls for him and guys for me.  You know, giving each other the inside scoop like best friends would do.  There were a few times we formally discussed how it would never work out between us.  He dated girls. I went on dates with guys (one time it was his roomate. . . after I had told him no!  I didn't know, really!!).  After a date with a really great guy, I sought out my girlfriend who was working on campus at the time.  I cried and told her that the whole time I was out with the one guy, I was only wanting to be with Matt.  She sweetly took my hands, and said, "You love him."  Of course, she was right;  but still it took another few weeks before it happened. 

Then, after the final discussion about how we would never work out, it happened.  We began talking about guys and girls.  He started talking about this one girl he was interested in, and I couldn't take it anymore. 

"You know," I said.  "I'm kinda jealous."
"You're jealous? he asked.
"Yeah.  You're supposed to like me. . . "

At that point, Matt said he no longer thought of that girl.  We spent the evening walking around campus just hanging out.  It was so not just friends anymore!  The next day, he called my dad and asked his permission to officially date me.  My dad was all too eager to give his blessing.  He had known that Matt was my guy for months! 

That was over 11 years ago now!  This summer, Matt and I will celebrate 9 years of marriage, and then in the Fall we will add another little one to our happy home, our fifth child.  He is still my best friend.  Oh, we have our moments!  But, we love each other.  We've been through a lot together. 

Our Family picture Easter 2010
Sometimes, you know that you made the right choice.  Saying yes to Matt was definitely a right choice for me. 

Wednesday, March 30, 2011

Hemophilia Awareness Month Daily Facts (a collaboration of the daily facts posted on my facebook statuses throughout March)

1. Hemophilia is an X chromosome genetic mutation. That's why girls are carriers. We have another X to make up for the affected X. (There are exceptions, but it's complicated) Boys don't. So, a mom that carries the gene (ie: me!) has a 50% chance of passing on the gene with every pregnancy. Dads who have hemophilia will never pass it on to their sons since their sons get their Y chromosome. However, all their daughters will be carriers since they get his X chromosome, and the affected X is the only one he has to offer.


2. It is very nice for a hemophilia mom to spend the evening at the salon (via birthday money) after an exhausting day at clinic with all the children. . . ;o)

3. The most common hemophilia gene mutation is "22 inversion". All the right information is there, but inverted in a section of the X chromosome. Therefore, the information that is there cannot communicate to get the job done (in this case: make factor 8!). This is the gene mutation in our family.

4. When you have a child with hemophilia, everyone is affected. We are not a family with a child with hemophilia. Our family has hemophilia. We may not all have it in our bodies, but we have it in our family. We are all in this together! :o)

5. When my Dad was a young boy in the 1940s and 1950s, most hemophiliacs didn't make it through their teen years because the only treatment was whole blood transfusions. Their was no preventative treatments. The few that did survive, suffered major bodily harm from their bleeds, and their bodies are mangled, but they're probably some of the strongest men you'll ever meet. The most impacting thing for me is to hear these men speak of the different life their grandsons have now that they have factor. (Based on the film,"An Unexpected Life. Living with Hemophilia." Presented by the Alta Bates Summit HTC)

6. To make a clot, our bodies make a platelet plug, then a fibrin clot to hold it all together. Hemophiliacs make the platelet plug, but not the fibrin clot. With little cuts and scrapes, the platelet plug is sufficient, but sometimes not when they are in the mouth. Saliva breaks down the platelet plug, and makes a lot of trouble! So, there is a liquid medicine called "Amicar" that is available to help. Amicar prevents the saliva from breaking up the platelet plug. Sometimes, this is so effective, factor is not needed! Yay for Amicar!!! :o)

7. What are the leading causes of bleeds for a little hemophiliac during childbirth? forceps, vacuum, internal monitor

8. How does factor work during a joint bleed? Blood starts entering the joint capsule. It fills up with blood. The factor helps the bleeding stop. Digestive enzymes eat away the blood, but also eat away at the cartilage and bone. Once a joint has had a bleed, it will always be more susceptible to getting more bleeds.

9. One of the greatest threats to hemophiliacs today is an inhibitor. An inhibitor is when their body starts rejecting the factor it needs so badly. When this happens to a factor 8 deficient person (hemophilia A), they are treated with factor 7 until the inhibitor is resolved. Clotting factors work like dominoes, and factor 7 is a good plan b for factor 8 deficient hemophiliacs because it allows clotting to skip a step. It is not easy. You have to infuse the factor 7 a lot more often than factor 8. Sometimes it takes a very long time for an inhibitor to go away.

10. Did you know that the worst position to give birth is lying on your back? This position reduces the size of the pelvis by up to 30%!! This is especially dangerous for babies with hemophilia since that would threaten the use of vacuum or forceps if the baby appeared to be "stuck", and those interventions are the leading cause of headbleeds for newborns with hemophilia. Get off your backs, ladies! ♥

11. Carriers of hemophilia have varying factor levels. Sometimes their factor level is well within the normal range. Sometimes it is the low end of normal. Sometimes it is so low they qualify as mild hemophiliacs. Rarely, it is low enough to qualify them as severe hemophiliacs. I thought this wasn't possible until I met a girl with severe hemophilia. The explanation for this is in how the chromosomes split and multiply soon after conception. Another interesting fact is that carriers typically have elevated factor levels while nursing or pregnant. Since I have been nursing and/or pregnant for the last 8 years, I don't know what my regular factor level is. When I was tested while nursing Eli, it was 90% (within normal range). I can tell you that I used to bruise a lot more than I do now!

12. When a person is having a bleed it feels like burning, swelling, sharp pain, or bubbles/tingling. Other descriptions include: "when a joint swells up with blood it is like having cement in there causing you not to be able to move"

13. It is super fun to launch caps off of empty syringes after prophy. . . ;o)

14. When you have a child with hemophilia, you no longer take it for granted when you actually can just "kiss it and make it all better" with a non hemo child or a minor injury with a hemo child. ♥

Tuesday, March 29, 2011

Ha! I just noticed. . .

I started posting on this again on March 28, 2011.  That is exactly 2 years after my previous post on March 28, 2009.  So, please note that there are 2 years between "I hate shopping" and "I'm so exited!!"  ;)

Amazing job opportunity!

Matt found an ad for a job the other day that almost knocked the wind right out of him because it was exactly what he wants to do.  It's called a clinical nurse educator.  This person would be part of a team that would educate medical professionals and patients about different aspects of hemophilia.  An RN is required of course, and being bilingual is required.  So, now he knows to study Spanish while he works on his RN!

Monday, March 28, 2011

I'm so excited!!

Matt and I recently went on a date and discussed our future.  Matt is taking classes in the evenings, and planning on going to nursing school next spring 2012 or fall 2012.  We are currently living near Buffalo, NY; but are planning to move back to MI after the school year is over.  We will miss many people and things about this area, but we are moving for a career change, financial reasons, to be closer to family, and some other positive reasons for us to live in MI rather than NY.  We are homeschooling.  The children are 7, 5, 3, 1, and we are expecting #5 in the fall.  So, lots of stuff going on! 

Ever since we found out about Elijah's hemophilia, I've been researching and talking to other moms about hemophilia and childbirth.  I started a blog called Bubble Wrapped Birth.  I also have a facebook page:  Bubble Wrapped Birth: How to Safely Birth a Hemophiliac.  It is amazing to learn from other moms, and share research and information on gentle birthing.  I plan to write a book, compiling all the information I've gathered, and sharing my own thoughts on the matter just in a mom-to-mom way.  Also, I really hope to be a midwife someday.  I would name my midwifery service "Bubble Wrapped Birth", work on getting lisenced to work in a hospital so I could do home or hospital births, and specialize in special needs cases such as hemophilia. 

Matt is so excited about this too.  He wants to end up working with the hemophilia community as an RN, educating healthcare professionals and patients about the different aspects of hemophilia.  The two of us would be quite a team!  The future looks bright for the Reeves family!